Alzheimer’s is a type of dementia that causes problems with memory, thinking and behavior. Symptoms usually develop slowly and get worse over time, becoming severe enough to interfere with daily tasks.
The information below has been provided by The Alzheimer’s Association. It is the leading voluntary health organization in Alzheimer’s care, support and research.
Alzheimer’s and Dementia Basics:
• Alzheimer’s is the most common cause of dementia, a general term for memory loss and other cognitive abilities serious enough to interfere with daily life. Alzheimer’s disease accounts for 60 to 80 percent of dementia cases.
• Alzheimer’s is not a normal part of aging. The greatest known risk factor is increasing age, and the majority of people with Alzheimer’s are 65 and older. But Alzheimer’s is not just a disease of old age. Approximately 200,000 Americans under the age of 65 have younger-onset Alzheimer’s disease (also known as early-onset Alzheimer’s).
• Alzheimer’s worsens over time. Alzheimer’s is a progressive disease, where dementia symptoms gradually worsen over a number of years. In its early stages, memory loss is mild, but with late-stage Alzheimer’s, individuals lose the ability to carry on a conversation and respond to their environment. Alzheimer’s is the sixth leading cause of death in the United States. Those with Alzheimer’s live an average of eight years after their symptoms become noticeable to others, but survival can range from four to 20 years, depending on age and other health conditions.
• Alzheimer’s has no current cure, but treatments for symptoms are available and research continues. Although current Alzheimer’s treatments cannot stop Alzheimer’s from progressing, they can temporarily slow the worsening of dementia symptoms and improve quality of life for those with Alzheimer’s and their caregivers. Today, there is a worldwide effort under way to find better ways to treat the disease, delay its onset, and prevent it from developing.
Learn more at: The Alzheimer’s Association
• Recruits participants for Alzheimer’s prevention studies.
• Uses genetic testing (through free cheek swab kits) to match volunteers with research opportunities.
• Advances Alzheimer’s research by helping scientists find enough qualified participants to launch new studies. 80% of research studies don’t complete enrollment on time, because they can’t recruit enough volunteers. We hope to prevent those delays.
Learn more at: GeneMatch
Brain Health Registry is a web-based, observational research study designed to effectively capture extensive amounts of data that may enable researchers to more efficiently identify, assess, and longitudinally monitor the cognitive changes associated with the progression of neurodegenerative diseases and brain aging.
• Participants in the Brain Health Registry complete online questionnaires and tests that, over time, provides researchers with valuable information and allows them to better track changes in an individual’s health, lifestyle, and cognitive function. These changes could potentially be important indicators of a person’s brain health and could help to best identify and recruit ideal candidates for medical research and future clinical trials. This is the first large-scale neuroscience project that leverages online possibilities in this way.
• By creating a large pool of pre-qualified potential participants, the Brain Health Registry can make clinical trials for neurological diagnostics and treatments faster, better, and more innovative – all of which may accelerate the discovery of effective treatments for brain disease and disorders, such as Alzheimer’s, Parkinson’s, depression, PTSD, and many more.
Learn more at: Brain Health Registry